OMG!!! What a difference communication makes! I had to pursue some real answers this morning. I emailed and called Janell and was able to satisfy myself for the time being re T's radiation treatment schedule, the lumbar puncture schedules and the next regime in the protocol. I also now know that there is hope...T is doing as well as can be expected for the time being.. he's exhausted and that's normal for this protocol. He's got a new med to increase his appetite and I'm hoping we turn the corner soon...
I didn't get any sleep last night so, I'm turning in... thanks for all the calls and concern. We're gonna be better soon...
Annie,
ReplyDeleteSo glad you got answers for your concerns. Things will get better...just got to get over this next hump. Your still in my daily thoughts and prayers.:)Hang tough as I know you will. You got lots of moxie lady.
Love to you both,
Di Houghtaling